Research has been pivotal for inflammatory arthritis in recent years. Not only in the development of new treatments, but also for the management and understanding of the cause of these diseases. However, as IA is caused by the immune system, one of the most complex systems in our bodies, there is still more to do and a lot of unknowns. For example, why some people react well to medications and others do not. One of our charity objectives is to promote patient and public involvement and engagement (PPIE) in research into its causes, treatments and management. Also to promote the dissemination of research findings related to inflammatory arthritis for the public benefit.
Throughout the UK and around the world, research into the causes, treatments and care of IA has greatly improved. The advancement of biologic disease modifying anti-rheumatic drugs in the late 1990’s and 2000’s was a turning point for treatment. They were the first drugs to target specific parts of the immune system available to treat IA. The addition of JAK inhibitors, which block another part of the immune system, have also improved the treatment pathway for patients.
The management and care of IA has also developed over the years to improve the quality of life for anyone living with IA. Many years ago, the medical advice was to rest when any joint was flaring, however we now know that exercise/movement is for the best to keep the joints active and to keep the muscles surrounding the joint strong and doing nothing can damage the joints even more.
There are still many unknowns regarding IA, and ongoing research can help fill these gaps. It is vital that the voice of those with lived experience is part of research. Both our founders have been involved in research. Debbie sits on many research steering groups and has been Cluster Consortium Champion for many years, making sure the voice of those with lived experience, especially children and families, are included in research projects. She has also worked with early career researchers to show the importance of working with patients/families and the impact their research can have for improving the lives of those living with IA.
IAUK aims to support research that helps improve the lives of anyone of any age living with IA. If you are a researcher and your project aligns with our vision and mission, please do get in touch below. Please note while we aim to support research as much as possible, we must reserve the right to decline a research proposal if we feel it does not contribute to our mission and vision of the charity or due to our limited resources.
We are delighted to be working with researchers who are requiring the voices of those living with inflammatory arthritis and parents of children living with a rheumatic disease. These are projects are a good opportunity to get involved in as they can really help shape future research, tech support for families and a new online patient portal collecting quality of life data directly from patients. Please contact the researchers or you are welcome to contact us for further details.
Are you older than 16 years old and have been diagnosed with childhood-onset arthritis? E.g. JIA or children’s chronic arthritis.
Researchers would really like to hear from you about how you feel about them using your data. Your opinion really does matter so please complete this anonymous survey – it should only take 5-10 minutes.
Survey click here
If you have any questions, please email Lianne Kearsley-Fleet lianne.kearsley-fleet@manchester.ac.uk
Impact Study
Dr Polly Livermore and the Impact study are working on a chatbot to help support parents. This is great initiative and please do help if you can.
Are you parent of a child or young person with a paediatric rheumatological condition? Do you often have questions you don’t have the answers to? Would you like to try out our new tech aide to bring you the answers you need from rheumatology professionals – day or night? If so, please visit www.theimpactstudy.co.uk and sign up to be first to try out our intervention. Any paediatric rheumatology condition, any age, any location in the UK. Hurry though, we are looking for users for the end of this month
Rheumatoid Arthritis Biologics RegisterThe British Society for Rheumatology Biologics Register for rheumatoid arthritis study team are looking for people with lived experience of rheumatoid arthritis to help testing their new online patient portal which will collect quality of life data directly from patients. They are able to reimburse you for time spent, it is all online. For further information please contact kath.watson@manchester.ac.uk or us at IAUK. |
contact us
We would love to speak with you! Feel free to reach out with any questions.
Inflammatory Arthritis UK is a registered charity in England and Wales, charity number 1211390.
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