Inspiring Resilience - Empowering Lives

Episode 12 – Q&A III

Key Topics Discussed:

  • Eye health and IA: Why regular checkups matter
  • The impact of upcoming UK PIP changes on people with IA
  • Workplace support, early diagnosis, and improving rheumatology services
  • Foot health and its role in rheumatoid arthritis assessment
  • Parenting a child with JIA: Tips for clinic visits, self-care, and independence
  • A lighthearted discussion on irrational phobias and funny personal stories
Transcript

Episode 12 Third Q&A Fatigue, Phobias and Everything in Between

Introduction: I can’t believe it’s been three months already since we launched. Yes, it’s our third monthly Q&A. Inflammatory with Debbie Wilson and Katy Pieris. Navigating life with inflammatory arthritis.

Debbie: Hello and welcome to Inflammatory with Debbie and Katy. Today is our third Q&A episode and they seem to have come around really quickly. But thank you to everyone who sent in questions. We’ve had a variety sent in and we will try to answer them all. But before we get to them, Katy, congratulations on your first of four 10K runs this year. How was it and how are you feeling today?

Katy: Thank you, Debbie. Really good. Yeah, I was really pleased actually. The weather held up. It wasn’t too cold. I was able to wear shorts and a vest. I was seven seconds quicker than when I did exactly the same run three years ago. So I’m pretty pleased about that.

Debbie: Fantastic,

Katy: because you always think that by this age. So I was under 40 last time that I did this run. So to beat it by seven seconds, you know, can’t complain.

Debbie: No, you’re improving with age.

Katy: I’m improving with age, of course, like a fine wine. But no, feeling fine. I played tennis after I’d done the 10K, which was probably a bit stupid.

Debbie: Oh my God, you’re mad.

Katy: Then I played tennis again the following day and went to netball training. So now I feel pretty shit, but completely self-inflicted.

Debbie: Completely self-inflicted, yes.

Katy: I’m doing zero exercise for at least, well, you know, walking, but zero exercise for at least the next three days.

Debbie: Okay, so is that shit or just is that IA shit that you’re feeling?

Katy: Good question, because there’s definitely fatigue in there. But sometimes this is where I do struggle when I know I’ve overdone it, is whether it’s just fatigue that anybody would get or whether it’s IA related fatigue. And I would actually say based on sort of the slightly numbness in the head, it’s probably more IA fatigue.

Debbie: Yeah, I think you need to learn to balance a little bit more going forward.

Katy: 100%. How’s your week been?

Debbie: Yeah, it’s been okay. Started on my painkillers for fibromyalgia, which obviously we discussed last week. But they’re kind of making me feel very tired, especially at night. I think they’re kind of like a light sedative, so they do make me very sleepy, but they’re giving me such weird dreams. So, I’m waking up during the night just weird. And like one dream, I was in Northampton, but it took me 10 minutes by train, which obviously could never happen. So, it was very, very strange.

Katy: Why would you dream about Northampton?

Debbie: That’s what I don’t know. I’ve got no idea whatsoever, which then really freaked me out because I was then in my kind of previous job, which I haven’t been there for over a year. So I don’t know what these are doing to my brain at all. But last night I actually slept through the night though, so that was fine. I did have strange dreams, but fibro brain just makes you then forget them, which is not too bad.

Katy: Oh, so you don’t remember them, so you can’t tell us about unicorns or flying saucers.

Debbie: No, I’ll try to write them down next time if I do wake up to you so we can talk about them on here and what do they mean. So yes, but no. And I also had my regular eye test on Sunday, which I wear glasses, and I’ve had astigmatism since I was born. Astigmatism is nothing to do with inflammatory arthritis. It’s just hereditary apparently.

Katy: Is that where your eyes are a different shape?

Debbie: Yes, your muscles in your eyes don’t work properly. So instead of having a football ball shape, mine are rugby ball shapes.

Katy: I’ve got a rugby ball eye.

Debbie: Have you?

Katy: Yeah.

Debbie: Oh, isn’t it lovely? So yes, but unfortunately that means I also need to have varifocals now, which I didn’t think I was old enough for, but because I have to take my glasses off to read, whereas people kind of my age more now have to wear reading glasses to see, but I have to take my glasses off to read and it’s just getting really annoying with kind of computer work and everything. So yes, so I have that, but I also have dry eyes, which is a common symptom of inflammatory arthritis. And I completely forgot about that, especially when we were discussing in episode six about body dryness, that it can affect your eyes. Because a few years ago when I went and saw my eye hospital, because my eyes get quite itchy, that’s again a sign of dry eyes. I had to be on four eye drops a day along with like this ointment. It was like in a really thick tube, and you had to put this, it looked like really thick cream in your eye to moisture your eyes every night. So, it was just really, really blurry and it was horrid. So thankfully they’re not as extreme as that now, but I do just have to have eye drops in my eyes once a day now.

Katy: Yeah, because I had a conversation actually with my, what are they called, ophthalmologist, because I get hay fever in the summer. I get itchy eye, but I also get a bit of dry eye. And I was having the chat with him last time I was in saying, is it my hay fever? Is it my disease? Is it my drugs?

Debbie: Yes.

Katy: What do you think it is? And his answer to me, not saying this is correct, this was just his opinion, is they don’t actually know whether it’s the disease or the drugs sometimes that’s actually causing it. Because this is a good reminder, I need some new eye drops.

Debbie: Oh, okay. Yes. But they’re available kind of for many opticians and pharmacists as well. So yeah, it was just a reminder that I had my two yearly appointment coming up and I think obviously it’s very important for people, especially on medications and with inflammatory arthritis, that you do keep up with those regular routine eye tests as well, because obviously they can pick up dry eyes and things like that, so it doesn’t get worse.

Katy: Yeah. Yeah. Because they can see all that, can’t they, when they do those little scary tests?

Debbie: Yes. Yes. We did have a bit of a laugh moment because she was asking me to read something and they had this big machine that comes in. Usually, they had like the glasses thing, but it was a machine and I was trying to read something and I just head-butted the machine. I kind of forgot it was there. So, we did have a bit of a laugh throughout that. But yes, in a couple of weeks I will be picking up my varifocals. I’ll let you know how I get on with them because I also suffer from motion sickness, which was really thinking, oh, do I want to try them or not? Because my husband has them and he just nods his head up and down when he’s kind of trying to read and stuff.

Katy: Right.

Debbie: We’ll just see how we get on.

Katy: So yes, every week’s different, isn’t it?

Debbie: It really is. Yes, it is. So, shall we get on to the first question today?

Katy: Yes, I think we should. So I think the first question that we had came in through Instagram and this one was, how are we feeling about the changes to PIP regarding inflammatory arthritis?

Debbie: That’s a really important question. The government did the announcement last week on this, but we don’t fully know all the details as yet on how many people this will impact or not. But I think firstly we need to kind of explain what PIP is. So this has been taken from the government website, gov.uk.pip, and we’ll add the links into the show notes. So it’s the personal independence payment that can help with extra living costs if you have both at the time of recording.

This is, one, a long-term physical or mental health condition or disability and two, a difficult doing certain everyday tasks or getting around because of your condition. But I think there is a slight misconception because you can have PIP even if you’re working. But what the government is trying to do now is to target PIP payments, but for those with higher needs. So, the eligibility criteria on that is changing. But basically, it’s just making it harder to get PIP is their underlying message. But I think from the charity point of view, we do fully support the government’s efforts to get people back to work. And we also recognize that many people living with inflammatory arthritis do work or do want to work. And as we mentioned back in Episode 7, which was our redundancy to routine, work provides a structure, focus, and a purpose. But for that to be truly beneficial, the working environment needs to be supportive and enable people to thrive.

And unfortunately, we know this isn’t always the case for people living with inflammatory arthritis. So, it’s not just the government taking that payment away. We really need to look at employers and businesses because I feel that they need to kind of step up and do a lot more support for people living with IA at work. And that does mean providing meaningful, flexible opportunities, which again we discussed in that episode, and that you utilise skills and experience whilst ensuring that there is that open communication. Communication, again, we spoke about that and actually how employers see what employees truly need to actually really help them, support them to be in work. And yeah, employers just must educate themselves. IA is such a spectrum. And it’s kind of for them to get to understand what the disease is, how it fluctuates, how people can flare with it as well. It’s not just, you know, one-time pain thing. It can impact us a lot more different day sort of thing. And also, it’s not just for older employees. They need to know that inflammatory arthritis can affect younger individuals as well.

And then I also think this ties into better services. We know that early diagnosis is crucial. We don’t yet know the NHS long-term 10-year plan, but we do need to really push to get rheumatology services to really get those waiting lists down so people that are diagnosed quicker. And once they’re diagnosed quicker, they start treatment a lot sooner because that does give them a better outcome. And it also increases their chances of staying in work as well. Because otherwise, if they’re waiting long, these can get worse, and they won’t be in work. So, we need all of that to work as well. And the access to treatments as well. You know, home care, delivery services, I think they’re improving. But again, all of that needs to work so much better in order to get people to stay in work and to return to work as well. So, we are going to be working with the government businesses and healthcare providers to make people with IA who can still work and return to work be able to by really making sure that the workplaces are inclusive and accessible. We can’t change what we have, but they can change the support around us. Does that make sense?

Katy: Yeah. No, that makes sense. I think that is a really important point in terms of actually that it’s not up to one organisation. It’s up to sort of all organisations and people working together to help deliver the best outcomes for patients and people living with inflammatory arthritis.

Debbie: Yeah, I completely agree. So, if there is more announcements coming out, they’ll be on our website so people can have a look. It’s inflammatoryarthritis.org. So on to the next question. It’s kind of talking about foot health. This came up in Episode 9, our 1% episode.

And it’s why isn’t foot health included in the DAS score, DAS 28? And DAS is mainly used for those with rheumatoid arthritis. By the way, there are other scores for juvenile arthritis. It’s the JADAS score, which is Juvenile Arthritis Disease Activity Score. But for rheumatoid arthritis, we’ve actually got a voice note from Professor Adam Croft talking about why feet are not included in the DAS score.

Prof Adam Croft: Hi, Debbie. Thanks for the question in regards to DAS 28 and feet. Your audience is absolutely correct that DAS 28 score for rheumatoid arthritis doesn’t include the feet. And one of the reasons for this is the research at the time that the disease activity score was being developed showed that if you just included 28 joints as opposed to including more joints, the overall DAS 28 score wasn’t different. So when they included feet, actually, they didn’t find that it made a significant difference to the ultimate disease activity score and therefore how the patient was subsequently managed or treated.

I think over time, most rheumatologists have felt that that probably isn’t correct with our observations in clinic and feel that the DAS 28 score under-represents pathology in the feet, particularly where patients have an arthritis only really affecting their feet, which can sometimes happen in isolated cases. And I think, therefore, it’s important to remember that DAS 28 is just a tool and it’s one tool that is used and it doesn’t override clinical judgment. So if the treating doctor or physician or rheumatologist still feels that there’s very active disease in the feet, they can incorporate that into their decision-making with the patient in regards to treatment.

So I wouldn’t be too concerned, but that is the reason why the DAS 28 score was developed not including the feet because when it was included on a population level for many patients tested in clinic, it didn’t make a difference to the overall score. And that just reflects that in rheumatoid arthritis, often the feet aren’t significantly involved, but they certainly are for certain patients, so it’s important to bear that in mind. I hope that helps answer the question.

I think the important thing is always to remember these tools are developed in a clinical research setting on a population level, not on an individual level. And so, we absolutely recognise that foot health in rheumatoid arthritis is important and sometimes the DAS 28 score under-represents that. So, it’s still important for all rheumatologists to examine the feet and listen to patients’ concerns in regards to that. Thanks.

Katy: Great. That was really useful actually because I didn’t realise about why the feet weren’t included originally. So, it’s interesting how this is forever changing and the perception from the healthcare professionals looking after the patients is so important as well and that these ways and methods are continually potentially changing. So, I’m sure we’ll keep up to date with any future changes on this. And I know in last week’s newsletter, we did share the latest news from the British Society for Rheumatology around foot health and foot care. So do take a look on the website for further details on that.

Debbie: I’m guessing, Katy, please correct me if I’m wrong, but you do have a DAS score for your rheumatoid arthritis. And they should obviously measure it at every kind of clinic appointment. How do you feel about it? Do you kind of worry about it? Do you obsess about it at all?

Katy: So, I think it’s changed throughout my time of having the disease. So, I think in the early days, I probably took more notice of my DAS score than maybe I do now because for me, it was super important when I wanted to get onto biologic medications, I needed to have a high enough kind of disease activity so that they would actually give me access to the medications. And the reason I wanted to go on those medications was due to wanting to get pregnant. So, for me, it was mega important to kind of understand my DAS score and whether they allow access onto biologics or not. Then I’d say now, I probably don’t sort of worry about it too much. I know it’s measured at every appointment. They don’t always give me within the appointment what the score is. That’s normally something that I will pick up on on the letter that isn’t sent to me. It’s sent to my GP, which really frustrates me because I don’t understand any of the medical language used.

Debbie: Yes, I think that’s another issue altogether there.

Katy: So I will take note of what the score is because I am classified as in medical remission. So, I guess I just sort of take a look to see if that’s in the same sphere. I don’t worry about the point, blah, blah, blah. I just look at the kind of whole number. So I’m in the two points, some things in general, which is pretty low. And I know sort of when I was originally diagnosed was I somewhere in the sort of five, six spectrum. So, it’s gone down dramatically over the last few years.

Debbie: Oh, well, that is good. And I think obviously it does prove that your disease is kind of less active. So yes, that is great.

Katy: Yes, but then if it went up, then I’d really start to worry. And then I’d know there’s a problem. So it’s useful. But I think for me at this point in my disease, I don’t worry about it too much.

Debbie: Fair enough.

Katy: So I think should we move on to the next question? We’ve had a really interesting one. Again, another one that came through from Instagram. This is directed at you, Debbie.

Debbie: Oh, gosh.

Katy: Are you scared for your daughter to leave home knowing you can’t be there?

Debbie: Oh, that’s a good question. Yes and no is the answer. And I think for any parent, you know that you want your child or who’s now a grown adult, that they’ll be OK when they leave home. I think that’s whether they’ve got inflammatory arthritis or not. You know, as a parent, I think you’d always worry. So I think there’s always, yes, I would be scared when she goes. But then also, no, because I hope I’ve brought her up in a way that I would want to feel that I’m OK to cope with this now.

I want her to have known that she’s got that resilience and that confidence and that mental strength, I think, to kind of think that if she is flaring, because she’s going travelling and then she’s going to go to university, and I can’t be there for that. But kind of even when she’s travelling, that she can’t take her meds, that she knows what to do if she flares and she doesn’t panic. And the anxiety of all of that and not being close to home doesn’t impact her. I just hope that she kind of can go, I know what to do now. If she needs to rest a little bit, she can, but then do some slight movements to kind of help with the flare as well. So, in that respect, no, as well. And I think also this is why we started the charity as well, because I don’t want inflammatory arthritis to be a barrier for anyone to do whatever they want to do. And I think, Katy, this is why you and I are so similar on that, because it’s never stopped you from doing anything. You learn to adapt and process everything that goes along with the disease. But you kind of should hopefully feel that mentally stronger to actually go, I can do that. Or if not, I know how to adapt in order to get there sort of thing. So yeah, and I just want her to go see the world. I’m excited for her, actually, because it’s just, you know, I think any parent, you’ve seen your children grow up and you want them to go and just live their life. And just, yes, I’m excited for her in a way.

Katy: Yeah, because your role as a parent is, I think, to give them the skills and the ability to be without you.

Debbie: Exactly. You know, you can’t wrap them in cotton wool as much as you want to. But yeah, they have to. And I just hope I’ve just brought up two independent, strong, confident young ladies to actually go and do whatever they want in the world.

Katy: Amazing. I think you’ve done a brilliant job.

Debbie We’ll see what happens in a few years. Right. So, another one, which is obviously a slightly, probably aimed a little bit towards me as well. But it was, yeah, this came through on email. So, thank you so much for your episode last week. This is where I spoke about parenting a child with JIA, which is from the previous question as well. What other tips would you give parents of children diagnosed with JIA? I think that’s a good question. And one tip that I really would say is to make sure you know who you’re seeing. I think I listed all the people that my daughter saw after her diagnosis, and there were a lot. So, it’s just making sure that if they’re seeing the physio, that they wear, if it’s in the summer, making sure they wear shorts and like a loose T-shirt, or in the winter, joggers over shorts. Because one time we did forget and she was like, I don’t want to get undressed at all. And she was all very uncomfortable.

And that obviously then accentuates in the whole clinic appointment and everyone feels uncomfortable. So, it’s just making sure that, you know, if they’re seeing that or their consultant as well, that just generally shorts, joggers are a really good thing to wear. And also, if they’re seeing a podiatrist, take along their school shoes because they’re the shoes that they will be wearing generally most of the time in a way. So making sure that you take them with you because for any insults that they then put in the shoes, they need to just make sure that they’re suitable for the school shoes. And also look after yourself. Do not blame yourself at all. These things happen. I really did blame myself and it caused me to go into very dark places, which we won’t discuss, but it was awful. And I wouldn’t want any parents to blame themselves at all.

Make sure you have that good support network, but yeah, really do look after yourself because I think for any parent, you need to do that in order to look after your child that bit better in a way. So yeah, just make sure you look after yourself and have that good support network.

Katy: Very good. And then I think we’ve got this final question. This came in from Kerry who asked, it’s a little bit of a funny one again. What are your irrational phobias? Hers are moths and belly buttons.

Debbie: Ooh, belly buttons. That’s an interesting one. So what’s yours, Katy?

Katy: So I would say bees. I’m quite scared of bees.

Debbie: Have you ever been stung by a bee?

Katy: No, I’ve never been stung, but I scream like a lunatic and run and flap and everything you’re not supposed to do. I cannot stand the things, even though I do know bees are so important for pollinating the world. I’ve watched the bee movie. We actually watched it over the weekend, and you know, I know we need them. I know we need them for our food sources, but I don’t want them near me.

Debbie: I have a very funny story about being stung by a bee. I was bringing the washing in, and you know when you kind of, I forgot to take the basket with me. So, I was just, we had massive towels. So, I was putting the towels and putting it over my shoulder. And then I was kind of then hugging and kind of taking the next towel off. And I didn’t realize there was a massive bee on this towel and it stung my boob. It was, I screamed in pain and it was stuck on me. So, I had to kind of flick it off. And then I didn’t realize I have an allergic reaction to bee stings. And the way I found that out was because it looked like I had half a boob job.

Katy: I was going to say, did you have three boobs?

Debbie: I just had one like massive one. And I phoned my husband, I put it on like a Facebook saying, just how do you stop the pain in like bee stings? And people are saying, oh, you rub honey. And I was like, I’m not rubbing honey. It was such a really hot day. So, then I had to, I couldn’t wear a bra because it was just so, so painful and so swollen as well. And then I had to go and pick my kids up from school. And I had to find this baggiest of jumpers. And my kids were like, mum, why are you wearing a, it’s really hot. What’s wrong with you? And I was like, I’ve been stung by a bee. And I’m like, oh wait, I’m not showing you how the school run.

Katy: It reminded me of the new Bridget movie for those who, if you’ve watched it when she ends up giving, she gives herself massive lips. So, I don’t know why you just reminded me of Bridget Jones.

Debbie: We did actually watch all three movies over the weekend. So, we’re now ready to see the last one. But yes, I agree with you there though, Katy, bee stings, I do not like. I don’t like bees. I do scream a lot, but my one is actually quite an odd one. It’s polystyrene. It’s that noise. You know, it’s just that noise.

Katy: You get weirder.

Debbie: It’s just, I can’t stand the noise of getting out of a cardboard box and just scraping. It just, it just, oh, it makes me do such funny.

Katy: Do you know how I’m going to start next week’s episode?

Debbie: Don’t you dare. There will not be an episode.

Katy: I do have another weird one as well. Oh, okay. Is that I might jump off the edge of something because I quite often.

Debbie: You’re saying I’m weird.

Katy: So, I quite often, like if you’re stood on something high, like whether it’s a mountainside, a skyscraper, I kind of think I might be able to fly like Supergirl. And like there’s this weird urge.

Debbie: Don’t. Yeah. Katy. Unfortunately, humans haven’t evolved yet to have wings. So please don’t try it. Have you thought about jumping out of a plane with a parachute?

Katy: I have done that. You have.

Debbie: Oh, okay.

Katy: And I’ve done a bungee jump. And you’ve done it.

Debbie: Right. Okay. Yeah. Another one for me is height. So I probably wouldn’t be able to do a bungee jump. And yeah, I suppose bridges. It’s weird. When I went over the bridge between England and Wales, the Prince Charles Bridge, I had a major panic attack. I couldn’t, I hated being. Oh, wow. Up there so high.

Katy: Because heights isn’t that irrational, is it? A lot of people are scared of heights. And it is a true, in my head, that’s a true fear. Because actually that is potential life and death.

Debbie: But I would say jumping off something as well without a parachute, Katy, that’s kind of life or death as well.

Katy: I just, because it’s more a fear in myself and my ability not to do it.

Debbie: Oh, okay. Right.

Katy: That’s weird, isn’t it?

Debbie: That is very weird. Yes. Because I’ve been on a glass. Have you been on a glass ceiling?

Katy: Yeah. Yeah. So, in somewhere in Australia, there’s like a glass.

Debbie: Just a glass floor, isn’t it?

Katy: Yeah. Yeah. Because my husband is really scared of heights and he hates it. Like if you’re on, if we’re anywhere like you go on a walk, I love going and creeping out onto the edge as close as possible to see what I can see. Right. And he has a massive meltdown.

Debbie: Yeah. That would be the opposite. My husband would do that, and I would be sitting there having a massive meltdown. Because I went up the CN Tower in Toronto and there was a glass floor there. And I was kind of quite brave, went out and I sat there, and I was like, quickly take a, my husband, quickly take a photo. But then a load of kids came up and they were jumping on it. And I was having like, get me off, get me off, please. So, I just ran off. It was horrid. But yes, but I didn’t want to jump off it Katy, I must admit. So yes, interesting what you kind of get to know about us on this podcast. Yes.

Katy: No, I mean, yeah, blown, mind blown. Polystyrene.

Debbie: Oh, don’t. But Jeremy, when I recorded, went to see the Grand Tour being recorded, Jeremy Clarkson did say that as well. He has a phobia of polystyrene. So, we have something in common with him. But anyway.

Katy:  oh, look at you. You’re always trying to link it back to the Grand Tour. Oh, did you got to get it in there somewhere? Never ever watched it in my life, but I feel like I should.

Debbie: You’ve never, oh my gosh. Right. Well, you have to come around and we will just binge watch the whole of the episodes. There’s loads, by the way, we can go back and do the whole previous Top Gear as well. So don’t you worry about that.

Katy: I used to watch Top Gear growing up.

Debbie: Oh, okay. Yes. We will do a Grand Tour-a-thon soon. Okay. But anyway, the next week we are back to normal. We’re going to be talking about being a parent with inflammatory arthritis and how that impacts on our lives and our children’s lives. But please do keep sending in your questions throughout the month via our website, inflammatoryarthritis.org, where you can also sign up to our weekly newsletter as well. Also follow us on social media. We are on Blue Sky, LinkedIn, Instagram and Facebook. Search for Inflammatory Arthritis UK. We’d be very grateful if you could leave a review and rating from wherever you get your podcasts from. And until next time, it’s goodbye.

Katy: Goodbye.

Show notes

In this episode, Debbie and Katy answer questions in their third monthly Q&A session. They start by discussing Katy’s recent 10K race experience, discussing the impact of overexertion and fatigue. They explore the difference between general tiredness and inflammatory arthritis (IA)-related exhaustion, as well as Debbie’s experience with new fibromyalgia painkillers causing drowsiness and vivid dreams.

The discussion moves to eye health and the importance of regular checkups for those on IA medications. They answer the first question on the proposed upcoming changes to the UK’s Personal Independence Payment (PIP) and how it might affect people with IA. They also highlight the significance of workplace support, early diagnosis, and improved rheumatology services.

They also explore foot health and rheumatoid arthritis assessment with expert insights from Professor Adam Croft. They discuss the limitations of the DAS 28 score, which doesn’t include foot involvement, and share personal experiences with tracking disease activity and accessing biologic treatment.

Parenting with IA is another key topic with two questions, with practical advice for parents of children with juvenile idiopathic arthritis (JIA), covering clinic visits, self-care, and preparing kids for independence.

The episode wraps up with a fun discussion on irrational phobias—ranging from bees to polystyrene—and a humorous anecdote about a painful bee sting.

Topics Covered:

✅ Eye health and IA: Why regular checkups matter
✅ The impact of upcoming UK PIP changes on people with IA
✅ Workplace support, early diagnosis, and improving rheumatology services
✅ Foot health and its role in rheumatoid arthritis assessment
✅ Parenting a child with JIA: Tips for clinic visits, self-care, and independence
✅ A lighthearted discussion on irrational phobias and funny personal stories

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Next Episode:

Next week, we’re back with a deep dive into parenting with inflammatory arthritis—how it affects our daily lives and our children’s experiences. Stay tuned!

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Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.

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