Privacy Notice

Inflammatory Arthritis UK Privacy Notice

Inflammatory Arthritis UK is charity funded by donations. We are committed to maintaining your trust and confidence in us. We do all we can to protect your privacy and make sure the personal data you provide us with is kept safe.

We do not sell, rent or trade email lists or contact details with other organisations for marketing purposes.

Visitors to our website

Website cookies

Our website uses cookies to collect additional website usage information and improve our service. A cookie is a small text file that is saved to your device. We do not use cookies to collect personally identifiable information. If you leave a comment on our website, you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have fill in your details again when you leave another comments. These cookies will last a year. Other cookies will be saved for specific time periods, where others may last indefinitely. Your web browser should provide you with controls to manage and delete cookies from your device, please see your web browser options.

Google analytics

When someone visits www.inflammatoryarthritis.org we use Google Analytics to collect standard internet log information and details of visitor behaviour patterns. We do this to find out things such as the number of visitors to the various parts of the site. This information is only processed in a way which does not identify anyone. We do not make, and do not allow Google to make, any attempt to find out the identities of those visiting our website.

Links to other websites

This privacy notice does not cover the links from our website to external websites outside of our direct control. We encourage you to read the privacy statements on the other websites that you visit.

Social media

We have a presence on several external social media channels, including Facebook, Bluesky, Instagram, and LinkedIn. We do not provide your details with any of those channels.

Personal Data

This following information tells you what to expect us to do with your personal information.

• Contact details
• What information we collect, use, and why
• Lawful bases and data protection rights
• Where we get personal information from
• How long we keep information
• How to complain

Contact details

Email

info@inflammatoryarthritis.org

What information we collect, use, and why

We collect or use the following information to provide services and goods, including delivery and third-party referrals:

• Names and contact details
• Gender
• Addresses
• Health information (including medical conditions)
• Payment details (including card or bank information for transfers and direct debits)
• Website user information (including user journeys and cookie tracking)

We also collect or use the following information to provide services and goods, including delivery and third party referrals:

• Health information

We collect or use the following information to receive donations or funding and organise fundraising activities:

• Names and contact details
• Payment or banking details
• Donation history
• Health information
• Tax payer information (for Gift Aid purposes)

We collect or use the following personal information for service updates or marketing purposes:

• Names and contact details
• Addresses
• Marketing preferences
• Website journey information
• Health information

We collect or use the following personal information to comply with legal requirements:

• Name
• Financial transaction information

We collect or use the following personal information for dealing with queries, complaints or claims:

• Names and contact details
• Address

Lawful bases and data protection rights

Under UK data protection law, we must have a “lawful basis” for collecting and using your personal information. There is a list possible lawful bases in the UK GDPR. You can find out more about lawful bases on the ICO’s website. Which lawful basis we rely on may affect your data protection rights and the exemptions which may apply on the ICO’s website:

• Your right of access – You have the right to ask us for copies of your personal information. You can request other information such as details about where we get personal information from and who we share personal information with. There are some exemptions which means you may not receive all the information you ask for. You can read more about this right here.
• Your right to rectification – You have the right to ask us to correct or delete personal information you think is inaccurate or incomplete. You can read more about this right here.
• Your right to erasure – You have the right to ask us to delete your personal information. You can read more about this right here.
• Your right to restriction of processing – You have the right to ask us to limit how we can use your personal information. You can read more about this right here.
• Your right to object to processing – You have the right to object to the processing of your personal data. You can read more about this right here.
• Your right to data portability – You have the right to ask that we transfer the personal information you gave us to another organisation, or to you. You can read more about this right here.
• Your right to withdraw consent – When we use consent as our lawful basis you have the right to withdraw your consent at any time. You can read more about this right here.

If you make a request, we must respond to you without undue delay and in any event within one month.

To make a data protection rights request, please contact us using the contact details at the top of this privacy notice.

Our lawful bases for the collection and use of your data

Our lawful bases for collecting or using personal information to provide services and goods, including delivery and third party referrals are:

• Consent – we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
• Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:
  • Tailor service updates, and to campaign for better services on behalf of the community

Our lawful bases for collecting or using personal information to receive donations or funding and organise fundraising activities are:

• Consent – we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
• Legal obligation – we have to collect or use your information so we can comply with the law. All of your data protection rights may apply, except the right to erasure, the right to object and the right to data portability.

Our lawful bases for collecting or using personal information for service updates or marketing purposes are:

• Consent – we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
• Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:
  • Tailor updates on services

Our lawful bases for collecting or using personal information to comply with legal requirements are:

• Consent – we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
• Legal obligation – we have to collect or use your information so we can comply with the law. All of your data protection rights may apply, except the right to erasure, the right to object and the right to data portability.

Our lawful bases for collecting or using personal information for dealing with queries, complaints or claims are:

• Consent – we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
• Legal obligation – we have to collect or use your information so we can comply with the law. All of your data protection rights may apply, except the right to erasure, the right to object and the right to data portability.

Where we get personal information from

• Directly from you

How long we keep information

We do not keep your information for longer than necessary. We keep financial information for up to seven years due to legal and contractual requirements, and we delete all other personal information from our customer relationship management system if we have had no contact with you for three years.

How to complain

If you have any concerns about our use of your personal data, you can make a complaint to us using the contact details at the top of this privacy notice.

If you remain unhappy with how we’ve used your data after raising a complaint with us, you can also complain to the ICO.

The ICO’s address:           

Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF

Helpline number: 0303 123 1113

Website: https://www.ico.org.uk/make-a-complaint

Last updated 06 January 2025